Brian is father of James who has Cerebral Palsy. He is also a freelance fundraising consultant who specialises in working with small to medium sized charities. He has an MA in Sociology & Politics from the University of Sussex and is an occasional writer on charity issues. Brian is a trustee of Contact a Family and the Springboard Project.
Donna is mum to Eddie and Joe who has High Functioning Autism. She has worked in administration for most of her adult life, most recently at Littlehampton Baptist Church. She enjoys spending time with her husband and children...and the family dog!! Donna is responsible for managing the Reaching Families office, accounts and general administration.
Rosemary has three children William who has Autism, Oliver who has social communication and attention difficulties and Daisy. She first started working with parents ten years ago when she set up a baby-loss group. She has a particular passion for working with parents of children at mainstream schools.
Charlotte is a Family Support Worker for West Sussex County Council and has been supporting families who have children with disabilities across the county for nearly ten years. Charlotte grew up with her brother Phillip who had Cerebral Palsy and takes a special interest in support for siblings of disabled children.
Michele has two children Alana who was born with an extremely rare
genetic condition, Trisomy 9 Mosaicism and Maia. She is an Associate
of the Chartered Institute of Personnel and Development. Michele is
responsible for reaching parents and families in smaller towns and
villages across West Sussex.
Seb is a disability awareness trainer for local partners, Enable Me. He was born with Spina Bifida and has been a wheelchair user since the age of 10. Seb is also ranked 2nd in Great Britain at the Discus.
John is father of John who has Autism. John senior works in tour management and logistics in the music industry and has worked for some of the world’s best known artists. He has an MBA from Kingston University.
Denise has spent her 18 years working life in roles as a teacher and education advisor for children with disabilities and significant needs. She currently leads the Learning and Behaviour Advisory Team for WSCC, supporting children, families and schools.
Helen has worked with children with disabilities and their families since 1995. She worked for 14 years within the Health Service as Thera-playgroup co-ordinator at Chichester Child Development Centre and is now Director of 'Arc Autism Advice'.
Jo is a mum to 3 children, Imogen age 6 Archie age 3 and Zachary age 2. Imogen and Zachary have the rare genetic condition Cystic Fibrosis. Jo is a passionate advocate and fundraiser for Cystic Fibrosis and more generally, parents of children at mainstream schools.
Laetitia is a mum to Pierre who is 11 years old. Pierre has Autism and speech delay. Laetitia is an administrator at CAPITA/WSCC Partnership but also works with Pierre after school and during holidays on his ABA programme. Laetitia is also very passionate about Autism awareness raising and would like to see more provision and opportunities put in place for post 16 children/adults with special needs in the County.
Maria is mum to Tom who has Quadriplegic Cerebral Palsy and to his twin sister Iris and older sister Molly. Maria has worked supporting parents of children with SEND for Carers Support West Sussex. She is currently a full time mum. She campaigns locally and more widely for better access for all people living with physical disability.
Picture courtesy of Sussex Community Foundation